Canadian Association for Porphyria/Association Canadienne de Porphyrie

Upcoming events

No upcoming events

The Network of Rare Blood Disorder
Organization - Alberta

Education Day

October 17, 2015

8:00am - 4:30pm

University Of Calgary

Calgary, AB

This free educational event is designed for

patients, family members, and health care professionals.

Registration will be available

September 1, 2015

Master of Ceremonies

Dr. Bruce Ritchie
Co-Clinic Director Dr. John Akabutu
Comprehensive Centre for Bleeding Disorders
University of Alberta Hospital

Theme Speakers

David Page
National Executive Director Canadian Hemophilia Society

Dr. Dawn Goodyear
Co-Clinic Director Southern Alberta Rare Blood and Bleeding
Disorders Comprehensive Care Program - Adult Division

Dr. Nancy Marlett and Dr. Svetlana Shklarov
PACER Program (Patient and Community Engagement Research)
University of Calgary

Afternoon Breakout Sessions

Porphyria
Dr. Ewa Wesolowska
Department of Biochemistry
Hospital of the University of Montreal

Immunodeficiencies
Dr. Terry Harville
Associate Professor Pathology University of Arkansas

Dr. Bob Schellenberg
Division Head Allergy and Immunology Vancouver

Bone Marrow Failure (Aplastic Anemia, MDS, PNH)
Dr. Michelle Geddes
Clinical Assistant Professor, Dept of Medicine, University of Calgary

Hereditary Hemorrhagic Telangiectasia (HHT)
Dr. Marie Faughnan
St. Michael’s Hospital Toronto

Sickle Cell Disease
Alan Platt, P.A.C., M.M.Sc
Author of
Hope & Destiny:The patient and parent’s guide to
sickle cell disease and sickle cell trait (3rd Ed.)

Hereditary Angioedema (HAE)
Dr. Adrienne Lee
Hematology Department of Medicine University of Calgary

Hemophilia and Inherited Bleeding Disorders
David Page
National Executive Director Canadian Hemophilia Society

Share This Page

Any links provided to other web sites on this page does not constitute its endorsement or recommendation by the Canadian Association for Porphyria. The links provided on this page are only for your reference to aid you in finding the information you are looking for. The Canadian Association for Porphyria is not responsible for any of the contents within any of the websites referenced on this page.

Medical Disclaimer

Care has been taken to ensure that the information on this website is accurate at the time of publication. This information is, however, intended for general guidance only and is not meant to substitute consultation from a recognized health professional. The Canadian Association for Porphyria/Association Canadienne de Porphyrie disclaims for itself and for the author of this information, all responsibility for any mis-statements or for consequences of actions taken by any person while acting on information contained herein. Physicians and patients must make their own decisions about therapy according to the individual circumstances of each case.